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Thread: good news bad news

  1. #1
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    Default good news bad news

    The bad news first; Reni still cannot read. Her balance is sporadic at best. If you do a test where you have her look at a finger left, right, up, and down, she will go blind for about 30 minutes (she can see light but no images). She can stand and walk, but doesn't really have enough balance to do so without hanging on to something. Nor the endurance. She is still struggling with higher level (like algebra) type knowledge. As well as forgetting higher level vocabularly type knowledge.

    The good news; she is getting progressively better. She is still no longer paralyzied. Her doctor considers her a "challenge" and worked through last weekend, calling collegues from Stanford, UC Davis, and even a call to Italy (Reni liked that!), for advice. Now this will really tell you how serious he is.... his office takes Thursdays off, and he set an appointment for Reni on Thursday. His office help was surprised!

    Anyhow, Reni is in good spirits mostly. I can't imagine how hard it must be for her - always the prodigy - to feel so weak, and so "at risk", and to have almost the littlest things incapcitate her. Whenever she goes temporaily blind she cops a serious attitude. Almost likes she want to "fight". Though sometimes misguided that "attitude" is, it is the fight she gets from my mom. And my mom is a breast cancer survivor (more than ten years) whose cancer had spread throughout ALL her lymph nodes (she is to mean to die like that).
    I am 49, bald, ugly, and don't own a single cool thing. Kids like me though.

  2. #2

    Default Re: good news bad news

    I can't imagine how difficult this must be for your family. Your daughter sounds like she's tougher than anyone I've ever met. I'll be keeping her and you in my prayers.

  3. #3
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    Default Re: good news bad news

    She is handling it way better than I am. I am just doing whatever I have to do. If it isn't going well I am a pitbull, otherwise I am just on autopilot hoping for the best, and hoping others to pick up the ball when I get overwhelmed. So far, so good.

    On a human side (there is hope for the future side).... I am a full time sub for about 11 weeks now. The kids know the story. They know of Reni's accomplishments and have seen Reni now as well. These are very poor, hard scrable kids. Many of them abused. But they have empathy; they handle my moods, and give me no trouble when I make them mind. Even the ones with the worse attitudes.
    I am 49, bald, ugly, and don't own a single cool thing. Kids like me though.

  4. #4
    Ancient Arachnid Spider's Avatar
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    Default Re: good news bad news

    Progress is very good news, and also good news that her doctor is doing everything possible. I join the others in hoping that some day soon this ordeal will be just a memory for you both.
    Atrophy: what you get when you win atournament.

  5. #5

    Default Re: good news bad news

    Scott, I'm very sorry to hear about what's been happening, and I'm hoping for the best.

  6. #6

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    Scott - wish Reni well for me, and remind her that there are lots and lots of people who love her.

    R.I.P. Cyrano and Roxanne.

  7. #7

    Default Re: good news bad news

    Glad to hear that things are progressing, hope they keep going in that direction.

  8. #8
    NCAA Champ WhippetGrappler's Avatar
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    Default Re: good news bad news

    Great to hear Reni is doing better. This case sounds like the unexplainable things the body does to protect itself from harm. I had a similar, but not as extreme case when I was illegally slammed in a wrestling match. The body will paralyze itself when it thinks movement will do harm to itself. I litterally had an ER doctor screaming at me to move my extremeties when I told him I couldn't. He said "there is nothing keeping you from moving, no injury or anything. you need to move you arm now!!" It took a couple days for me to regain movement.
    Keep the faith. People's bodies react in different ways to different injuries. In the meantime, I will be praying for her to speed through her recovery.
    BRUTUS BUCKEYE WILL TAKE YOU DOWN...

  9. #9
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    Default Re: good news bad news

    Quote Originally Posted by WhippetGrappler View Post
    Great to hear Reni is doing better. This case sounds like the unexplainable things the body does to protect itself from harm. I had a similar, but not as extreme case when I was illegally slammed in a wrestling match. The body will paralyze itself when it thinks movement will do harm to itself. I litterally had an ER doctor screaming at me to move my extremeties when I told him I couldn't. He said "there is nothing keeping you from moving, no injury or anything. you need to move you arm now!!" It took a couple days for me to regain movement.
    Keep the faith. People's bodies react in different ways to different injuries. In the meantime, I will be praying for her to speed through her recovery.
    Thanks. I was pleasantly surprised when her leg suddenly came back from total paralysis for about three weeks. A lot of medical folks said if it lasted longer than a week that was not a good thing (meaning it might not come back).
    I am 49, bald, ugly, and don't own a single cool thing. Kids like me though.

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